Resources

 

Buy Books Here! With each book purchase, a portion of the proceeds will be donated to help our network of organizations…

 

Here are a few of our network of resources.  If you have a resource you’d like to share, please let us know

Simon’s favorite organizations for people with facial differences

About-Face

www.about-face.org

About-Face

P.O. Box 191145

San Francisco, CA 94119

About-Face means a reversal of direction, attitude, or point of view. 

About-Face’s vision is for women and girls to lead full lives, unconstrained by a preoccupation with appearance and body image, and for media representations of women and girls to be gender-balanced or gender-neutral.

About-Face improves girls’ and women’ self-esteem and body image through equipping them with tools to understand and resist harmful media messages. 

American Cleft Palate – Craniofacial Association

www.acpa-cpf.org

Advancing knowledge in all aspects of patient care and research for individuals affected with cleft lip, cleft palate and other craniofacial anomalies. 

The American Cleft Palate-Craniofacial Association (ACPA) and Cleft Palate Foundation (CPF) provides US and International treatment teams providing cleft care to different regions of the world.

AmeriFace- provides information and emotional support to individuals with facial differences and their families and increase public understanding through awareness programs and education.

www.ameriface.org

AmeriFace was founded in 1991 to provide educational and emotional support to persons born with craniofacial anomalies and their families. The organization soon expanded to also serve persons with acquired facial differences due to burns, trauma and disease, and in 2004 partnered with cleftAdvocate under the same corporate umbrella.  Programs also include support networks for Crouzon, Goldenhar and Treacher Collins syndromes.

AmeriFace supports individuals whose facial differences are present at birth, as well as those who have acquired facial differences as a result of illness, disease or trauma, such as stroke, cancer, accident and burns.

Children’s Craniofacial Association

Empowering and giving hope to individuals and families affected by facial differences

Children’s Craniofacial Association

13140 Coit Road, Suite 517

Dallas, TX 75240

Toll-free   800.535.3643

contactCCA@ccakids.com

Cleft Palate Foundation

www.cleftline.org

Provides information and support and runs Cleftline, a toll-free service providing information to callers about clefts and other craniofacial anomalies. 800-242-5338 or email at info@cleftline.org 

Face the Future Foundation

facethefuturefoundation.org

Face the Future Foundation works to transform the lives of Chicago-area children with cleft palate and craniofacial anomalies by facilitating access to state-of-the-art medical care and by supporting related research and education. 

Gifting smiles, building brighter futures, and transforming the lives of children is the mission of the Face the Future Foundation. The Foundation supports the UIC Craniofacial Center in the care and treatment of children born with craniofacial anomalies and related challenges.

Chicago Cleft palate/craniofacial treatment team

Craniofacial Center – multi-disciplinary team works to achieve functional, cosmetic and psychosocial normalcy for each patient for an improved quality of life. The Center is part of the Division of Plastic and Reconstructive Surgery within the Department of Surgery in the UIC College of Medicine, the largest medical school in the United States. The Craniofacial Center is certified by the American Cleft Palate – Craniofacial Association and is also an approved team by Division of Specialized Care Children.

University of Illinois Hospital and Health Sciences System

811 S Paulina St

Chicago, IL 60612-4353

Team Phone: 312.996.7546

Team Website: http://hospital.uillinois.edu/Patient_Care_Services/Craniofacial_Center.html

Patient Age Range: 0-99

Team Leader(s): 

Mimis Cohen, MD (Plastic Surgery). Dr. Mimis Cohen is the chief of the Division of Plastic, Reconstructive, and Cosmetic Surgery at UI Health.

David Reisberg, MD (Cosmetic Surgery). Dr. David Reisberg is the current president of Ameriface, a national organization that supports people with facial differences.

Facing Forward Inc

www.facingforwardinc.org

Facing Forward Inc.

1808 Huntington Rd.

Greensboro, NC 27408

Ph: 704-604-1132

Email:info@facingforwardinc.org

Facing Forward is a non-profit organization that helps individuals who have congenital or acquired facial or physical differences cope with staring and communicate with confidence, control and courage. Facing Forward offers

• Educational seminars and workshops

• Peer support to individuals, families and friends

• Information resources

• Public awareness

• Advocacy

• Referrals to organizations that provide assistance with specific conditions

Operation of Hope

operationofhope.org

Operation of Hope provides life-changing surgical care, healthcare & medical training programs in under-served areas of the world through international collaboration among medical & non-medical volunteers

Smile Train 

www.smiletrain.org

Smile Train is an international children’s charity with a sustainable approach to a single, solvable problem: cleft lip and palate.

Millions of children in developing countries with untreated clefts live in isolation, but more importantly, have difficulty eating, breathing and speaking. Cleft repair surgery is simple, and the transformation is immediate. 

Smile Train has transformed the lives of more than one million children by giving them the power of a smile. Smile Train performs one cleft surgery every five minutes. $250 equals 1 cleft surgery.

 

A Cleft Mommy’s Bond of Friendship

amazing online support group for cleft moms